Previous Events

ACTion for Jackson 2013
JGSF was honored to have President Kaler speak about the great collaboration between JGSF and the University of Minnesota at ACTion for Jackson 2013. This year's event, held once again at Christie's, raised an astounding $570,000 for EB research. We are grateful to all the attendees and sponsors, particularly our Title Sponsor- the Royal Bank of Canada..

ACTion for Jackson 2012
More than 400 people from around the country gathered at Christie’s in Rockefeller Center, NYC on October 26th for a fun-filled evening that raised over $375,000 for EB research. All the evening’s guests and sponsors showed their support for the exciting new therapies being developed at Stanford University and the University of Minnesota. Dr. Al Lane of Stanford University spoke of the tremendous impact JGSF has made in enabling the scientific community to work on finding life-changing treatments for EB. Stay tuned for details on ACTion for Jackson 2013.

Twin Cities Marathon Weekend
Team JGSF ran through the streets of Minneapolis and St. Paul as part of "the most beautiful urban marathon in America." The team also enjoyed a meet-and-greet with Dr. Jakub Tolar and a tour of the amazing Amplatz Children's Hospital. Congratulations to Team JGSF for completing the race and raising over $24,000 for EB research at the University of Minnesota..

Disney Marathon Weekend
Team JGSF rocked their tutus and took Disney World by storm with 40 runners participating in the Marathon, Half Marathon, and 5K. The team raised over $38,000 for research. Following the races, Team JGSF’s runners were treated to a fireworks celebration at Epcot hosted by National Rehab Team..

NYC Marathon Events
The Jackson Gabriel Silver Foundation is honored to be an official charity partner in the prestigious NYC Half and Full Marathons. Since 2011, Team JGSF has raised over $261,000 for EB research through its participation in NYRR’s Marathon Events. For more information on how you can become a member of Team JGSF in a future race, please email [email protected].

Jerusalem Marathon: Team Butterfly

On March 1st, 2013, more than 80 runners sprinted through the streets of Jerusalem as part of Team Butterfly. Under the leadership of David Beiss, a young man with EB Simplex, Team Butterfly raised has raised over $100,000 since 2012. Learn more about Team Butterfly (click here) and show your support by making a donation (

Epidermolysis Bullosa (“EB”) is a group of devastating, painful, disfiguring and currently incurable blistering disorders that affect children from birth.
Treatment for Epidermolysis Bullosa | What Is Epidermolysis Bullosa? | EB Research | EB Cure | EB Treatment | Dystrophic Epidermolysis Bullosa | Junctional Epidermolysis Bullosa | EB Pictures |